Duane and I received two cards this week that were so incredibly special I just had to share. (We suspect they may have had some help from MC's amazing hospice staff, however, when asked, we got denials all around.)
The first was from MC:
This one brought me to tears. Both the quantity and quality of the decisions we have had to make this year have been enormous. I'll never forget the first of our endless "family centered meetings." After that meeting, I drove directly to my firm. A place run by people who had so generously stuck with me as week after week my homecoming from India was delayed. Without so much as a discussion with Duane, I resigned from my job.
The fact is, no discussion was needed. Hearing our worst nightmare confirmed-- that our son had a very serious neurological condition along with a host of other complications meant that for us, there was no choice. We had stopped at nothing to bring these children into the world, and we would stop at nothing to keep them here.
|I know, he just keeps looking better every day.|
And I most certainly never intended to be a Stay at Hotel Mom (April to August)
or a Stay at Hospice Mom (November to present).
Indeed, I recall my first month in India watching I Don't Know How She Does It with my in-India bestie and thinking now that's the Mom I'm going to be. I mean really, I'm 30 years old. Give me a Starbucks and a few hours sleep and I can do anything.
But as I sat in that first meeting, I heard only one thing from the neurologist. So much of how your child progresses will be up to YOU. And he could not have been any more right.
The subtle nuances that we have observed from spending every possible moment with our MC have enabled us to make significant, life-saving decisions.
Decisions that cannot simply be posted on Facebook to "all my mommy friends." Can you imagine? Hey mommy friends, any recommendations for getting my child to breathe? Nope, sadly, our decisions do not work like that.
Nevertheless, it's easy to lose confidence that the sacrifices and choices we have made for these two children are, indeed, the "right" ones. I thoroughly appreciated this card... a small reminder of why we've made the ones we have.
We also received this card. A card, which like it's author, made us smile and laugh until our cheeks went sore.
Last weekend, Princess turned 9 months. In those 9 months, she has yet to meet a food, any food, that she has not liked. From her first taste of Indian ragi
to her more recent adventures in exotic eating
|Princess officially enters a stage where we cannot take our eyes off of her for one single second.|
Convinced it had something to do with spending the first 5 months of her life in the world's second most populated country.
|After her second set of vaccinations, I decide that Princess is fair game for all the eager-to-hold coffee shop strangers.|
And while he may look unappreciative in the video, you can see by his half smile afterwards that the he loves her in the same way too.