So I had the pleasure of having Rahul, himself, drive me these past two days and it was really lovely since I hadn't seen him in awhile. What I appreciate most about Rahul is his unfiltered honesty-- a really refreshing trait.
Of course, sometimes, the truth hurts. Like when someone looks at you and says, "Ma'am, you are not looking good today." Well gosh, Rahul, thanks. But I knew what he meant, as he clarified that it looks like I have really lost the weight and am looking tired.
And you know what? He's right.
Monsoon season began last week
and after three and a half sunny months, the atmosphere in Delhi has suddenly turned very grey.
I am ready to go home.
Master Hayden, on the other hand, apparently has his doubts. Currently, he is on 30% oxygen. The doctors have concluded that he has Chronic Lung Disease-- a tricky diagnosis as it's now up to Hayden to decide when he's ready to kick the oxygen. Could be tomorrow. Could be months from now. And unfortunately, there's not a whole lot we can do to motivate him one way or the other.
Rest assured, however, that his doctor and I are working on a plan to get us home. I'll keep you posted...
Meanwhile, Scarlett just told me that this is my most boring post ever.
I couldn't agree more. Serious blogging does not come naturally to me.
My dad suggested that I post some photos, so I think I'll take him up on it and leave you with a collection of pictures that I like to call The Many Faces of Hayden:
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| I am scared. |
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| I am silly. |
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| I am angry. |
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| I am not guilty. |
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| I am happy. |
Read this. Went on-line and saw what is said at Stanford Hospital. It sounds like the doctors in India have done all the right things (I am not a medical person).
ReplyDeleteA year in India was not be what you intended ... the article said it can take a year to resolve. I hope this is not what is predicted.
What a huge load to carry with your family so far away. And for them with you and the children so far away.
I send my wishes for good fortune and positive solutions. I am sure you are getting good advice and will, as always, make the right choices.
Yes, the doctors have been wonderful and done everything they can. If we were at home, we'd likely take him home on oxygen, but unfortunately, we're not. So it gets complicated with us being in India. We always appreciate the good thoughts and well wishes, as well as the lovely comments:)
DeleteI love the picture of Scarlett in her pretty dress and happy Hayden
ReplyDeleteIs there a way to keep him stable enough for a plane trip home ,and get him admitted to a hospital in the states , have you try to develop a relationship with a pediatric doctor in the states and explain hayden conditions too them or have his medical record sent to them , so they could help figure a way to get you home with your kids, because this is really beginning to wear on you ...
ReplyDeleteSo insightful you are:) We are looking into all of the above. I'll keep you posted...
DeleteAlso on that note Air India has a none stop to Chicago if its easier
DeleteOmg I love Hayden. Please let him get over his lung d disease and go home to dear Daddy Duanne
ReplyDeleteOmg I love Hayden. Please let him get over his Lund disease and go home to dear Dadd
ReplyDeleteOh this must be so hard for you. I can't believe you're still in India after all this time! I'm glad to hear you're working on a plan, though. Hope Hayden's breathing gets better soon.
ReplyDeleteLOL @ Master Haydens face gymnastics : ) His big brown eyes are so endearing and Scarlett is just beautiful.
ReplyDeleteVery excited to hear there is a plan hatching to get you guys home, hoping this develops quickly and you can be back with your family asap.
As wonderful as DNC and India is......there is no place like home.
I love "face gymnastics!" The guy can sure pull some expressions! And yes, there is no place like home. Hoping to get there soon!
DeleteGlad you are getting it all figured out. Can't wait to see to family united photos :) Scarlett is going to be just as funny as her mom I bet!
ReplyDeleteK
Hey Bernadette, I love the pics and I love how much you love your little ones. You are an incredible mother already and you are and will continue to make the right decisions for your children. The continual guts and determination that you and Duane have shown tells me how remarkable your children are going to be when they grow up in the love and care of such amazing parents. I hope that a really good US Paedatrician volunteers free of charge their services to you to manage this process to get Hayden home. Human behaviour can be quite surprising at times - maybe some friends in the US might be able to pull some strings there. You are probably over all of this well meaning advice but I know you understand it is of good intent as we all want to see your family reunited back home as soon as possible. xxxxxx
ReplyDeleteIt sounds as though you're making some progress at last. Lots of love and luck, Philip & Adam x
ReplyDeleteHey Bernadette!!
ReplyDeleteI do love the photos of hayden they are great!!
You are an amazing lady and have been all the way through, i hope that you find your sparkle and things move in the direction you want them to go!! sending lots of positive thoughts to Delhi and to you we are here for you and you never know i might get to meet you!!
Lots of love
lisa xxooxx
The photos are always so great. Thanks for continually updating...I'm sure it can be hard sometimes. Hang in there and remember we're all rooting for you three to be reunited with Duane and your family soon. Take care.
ReplyDeleteI hope that you all manage to find a good path homewards soon Bernadette. You are doing so well. Love SR xx
ReplyDeleteHey you, I am glad your doing well and your babies have made progress. Scarlett looks so beautiful, and I have Hyden in my prayers. i hope you are doing well too.
ReplyDeleteMichael
Sad to read that Hayden has been diagnosed with CLD. I was just going to comment that maybe you could bring him home on oxygen, when I see that you had already responded that that is not an option.
ReplyDeleteIs he on any diuretic? Sometimes putting them on a drug like that can help rid the lungs of any fluid they may be carrying around, which can in turn help lower oxygen requirements. My Noah was on lasix and then diuril to help keep his lungs clear. Maybe it's worth a shot?
COME ON MASTER HAYDEN!! Thinking about you often...
What adorable children! Work on that plan to get yourselves home! If you need anything from the states just let us know! We live really close to some seriously good pediatric hospitals (CHOP, A. I. Dupont) and if you need a courier or any info sent just ask. Remember to take care of yourself too! We mommies tend to forget about ourselves sometimes ;-)
ReplyDeleteWishing master Hayden a speedy recovery x
ReplyDeleteIf you've lost weight and look really tired it means you are officially a mommy. :-)
ReplyDeleteHoping you are able to go home soon.
sending many positive thoughts for hayden's recovery!! i will keep saying prayers that you all get to go home very soon. <3
ReplyDeletei love all of the photos and captions - scarlett's dress is adorable!
big hugs!
xoxox
maria
Bernadette, you are a real trooper and I hope whatever plan you're working on goes well and we can all see you guys come back to Maryland. It's been hot here as well, but nothing compared to India :). I'm sure you have many family and loved ones in Maryland, but if you need anything please please do not hesitate to ask...I wish you, Scarlett and Hayden the best and hopefully read that you guys are flying back soon!
ReplyDeleteBernadette, you are a real trooper and I hope whatever plan you're working on goes well and we can all see you guys come back to Maryland. It's been hot here as well, but nothing compared to India :). I'm sure you have many family and loved ones in Maryland, but if you need anything please please do not hesitate to ask...I wish you, Scarlett and Hayden the best and hopefully read that you guys are flying back soon!
ReplyDeleteHiya Bernadette
ReplyDeleteHope you have got on top of not 'looking good'. A session at VLCC will help, can't go wrong with some pamparing and of course get your hair done (plus or minus the massage!!!!)
This should be followed by some nice food. You can't really afford to lose weight and must keep healthy for your children. As you once said to me - "sort yourself out", not looking good is not an option you are of course a yummy mummy!.
Scarlette is adorable in that dress - love her and many faces of Hayden well he certainly is expressive.
Hope you are getting a plan in place to get home very soon.
Well... I'm not exactly glad that we'll be seeing you in Delhi in a week. I thought you'd all be long gone by now. At the same time, I am happy we'll get to see you again! Hang in there...
ReplyDelete