Friday, June 29, 2012

Normal x 2: Delhi Day 89

Well, aren't we on a roll this week?

Hayden had his bronchoscopy yesterday, and the results, once again... were Normal!

The day started much like the previous. I initially went in for a discussion of the MRI report. The conversation went something like this:

Me: Can we discuss the MRI results?

Doctor: Yes, they were normal.

Crickets.

Me: Ok, great.

Doctor: (Indian blank stare.)

Me: Well... how about the  bronchoscopy?

Doctor: We can do it.

Me: When?

Doctor: Sometime today.

Me: I'd like to be here.

Doctor: (Confused look.) Well that's fine. But you can't actually be here.

Me: (American eye roll.)

I decide to have a seat for the long haul. Hayden's C-Pap has just been removed and he is looking good.

The nurses start an IV on him and I ask for a timeframe for the procedure. If it's going to be in the evening, I'd like to go back and check on Scarlett.

"Timeframe?" the nurse responds. "Oh, no. No timeframe."

Got it.

Hayden's roomie E is getting ready for discharge and I'm able to chat with E's mommy. The hearing doctor comes in to perform E's hearing test. E's mommy is asked to leave. Mind you, my lawn chair is about 2 feet from E, but alas, I am allowed to stay.

Strangers are ok. Parents are not. Oh, India...

I'm able to survive about 1.47 hours in Hayden's room before I. Must. Get. Out. I do not know how to describe the heat in the NICU, except to say that if you were to add several heat lamps and phototherapy machines to a 110 degree un-airconditioned room packed full of people... it still would not be as hot as this NICU.

I walk out to the waiting room and there are people EVERYWHERE. Lying, sitting, standing, crouching. Ahhh... it's Thursday. No wonder. Thursday is ROP day. Which means that every child in all of India comes to the NICU to have their eyes checked.

Here's the funny thing. The NICU doctors insist that you show up no later than 11 a.m. For 14 Thursdays, I've heard the same instruction. Make sure you are here no later than 11 a.m. But apparently, the NICU doctors are the only ones unaware that the eye doctor is scheduled to show up no earlier than 1 p.m. Which is actually no earlier than 2 p.m. Indian time. (New parents don't say I didn't warn you-- because you will still show up no later than 11 a.m., else we wouldn't be able to refer to you as "new" parents.)

Anyways, I find E's mommy in the waiting room, and desperate to escape the confines of  the NICU, we decide to go for a leisurely stroll around the neighborhood.




See? Told you we were desperate. 

Feeling sufficiently cooled off, we return to the NICU where E's mommy is chastised by the doctor for leaving! No worries-- it was Bernadette's idea. Mmmm that would explain it.

Meanwhile, I flag down Dr. Singh and ask for an ETA on the bronchoscopy. He knows nothing about it. Excellent. Where's Dr. Gupta? Oh, he left. Even better. I resign myself to a lawn chair in a back corner room.

I chat with the locals. I chat with the foreigners. I chat with the staff and the drivers. Another 4 hours pass by until I am the very last person left in the waiting room.

Random picture of Scarlett because this post is getting way too long.
Finally, an unfamiliar man with the air of a doctor walks in. I watch him disappear into the nursery and shortly after, the nurse calls me back.

Initially, the unfamiliar man ignores my presence, which I am completely used to by now. Indeed, I'm so busy internally cheering that I've been invited into the nursery, I hardly seem to notice.

Suddenly, he turns to me, introduces himself, shakes my hand and starts explaining the procedure that he's about to perform-- including the fact that Hayden is going to be sedated with kitamine. I am in total shock. This has never happened before in India and I tell him how grateful I am. He tells me that I am entitled to this type of information. You mean I'd be entitled to this information if I were in America, right? He has a good laugh.

He then asks if I've signed a consent. Now it's my turn to laugh. Seriously?!?

He asks the NICU nurse about a consent and now she has a good laugh. At this point it's turning into one big comedy fest.

The specialist rips off a piece of notepad paper and handwrites: "The procedure has been explained and I understand that the baby could require oxygen or C-Pap." He hands it to me and I sign. 

The NICU doctor suddenly makes an appearance and I am told to leave for the procedure. Darn. I was so close. About 15 minutes later the doctors come out and the specialist explains that everything is fine. "Everything?" the NICU doctor asks. He looks completely perplexed.

"Everything," the specialist says. "Everything looks fine."

Hmmmm... Poor NICU doctor looks incredibly frustrated. I gently suggest that perhaps "we should just have patience" and for once, he too, has a laugh.

15 comments:

  1. Oh Bernadette, you are amazing for being able to see the humor in all of this. Those of us who have clocked our time in India (though not anywhere nearing your record) understand the tounge-biting, eye-roll-restraining, take-a-deep-breath-before speaking, patience required, but I think you're now prepared to write a PhD thesis on it. I hope you are nearing the home stretch.

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  2. You are an incredible inspiration! I love that after everything you have been through, you maintain your sense of humorous and resolve:) I enjoy reading about your journey and your spunk. I can't wait for the day you and those sweet babies get to go home and get squeezes from Duane:) Bet you didn't know how patient you could be;)

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  3. While I'm sure it must be frustrating not knowing what is wrong, if anything, YAY to another normal!!! I'll be sure to have a drink for you tonight toasting to patience.

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  4. Glad EVERYTHING is fine. (think this means you are actually back in U.S. but unaware of this having happened.) MUCH sympathy, MANY good wishes. Do not want to even think I can imagine the heat, dust, noise, difficulties. (real one) soon for all 3 of you!

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  5. Oh, you must write a book, Bernadette. I love your writing, and I believe YOU love writing and find it to be a way of letting it all out, too. :)
    I am thinking of Hayden every day and look often for your posts. Be strong and brave. Lots of baby hugs to your kids! And...
    Hayden, come on, your address is supposed to be in USA!! Get well!

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  6. I'm still holding out for some even better news next week that Hayden is to be discharged. X

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  7. Only in India.....Well, if nothing else, at least you have gotten an Indian doctor (and male, no less!) to laugh...that my friend, is progress...glad Hayden is hanging in there...

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  8. You have such incredible patience. We had 10 says in NICU and it about drove us insane. Glad babes are doing well. :)

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  9. Just like everyone else, I look forward to your posts everyday... You are so patient and have such a positive attitude. I'm hoping that Hayden gets cleared for takeoff soon though so Duane can hold those little ones too.

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  10. I always thought you looked dewy in your NICU pics and assumed it was the joy of spending time with Hayden, and now I know its just sweaty dew :). God love ya for your patience and sense of humor. Mister Hayden will have quite the story to be told when he is older!

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  11. Love reading your posts!!
    Glad Hayden got another "normal" test result!!
    Hope this means Hayden will be getting discharged soon.
    mandy

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  12. Hayden looks really good. Bernadette I think you should become a paid author for your writing. I think you help alot of people on this journey to understand what it is like. Hope everything stays normal and that you can get home soon.

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  13. Hey what are you feeding your baby girl?!?! She is morphing so quickly she's gorgeous! What a great mum A xo

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  14. Oh yes Bernadette, the HEAT in that room was mind blowing and I think you are amazing for dealing with it for so very long!! Having babies who need you is a wonderful motivater for putting up with pretty much anyghing though hey? Glad to hear all the results for Hayden were normal. Sending you all our love and I am so looking forward to the post that finally announces you are all going home together soon xx

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  15. So happy for the NORMALS! Let's go Hayden!
    K

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