Normal.
Now there's a word that's rarely (if ever) made it into one of these posts.
But that's what the doctor told us when he spoke with the specialist after Hayden's MRI today.
The MRI results are Normal.
And breathe.... (Literally, Hayden, start breathing!)
Now there's a word that's rarely (if ever) made it into one of these posts.
But that's what the doctor told us when he spoke with the specialist after Hayden's MRI today.
The MRI results are Normal.
And breathe.... (Literally, Hayden, start breathing!)
As I mentioned before, we don't do definite dates in India. So when I showed up at the NICU today and was told that the MRI would be done "sometime today," I was surprised but not surprised.
Having arrived around 9:30 a.m., I spent a few good hours staring at Hayden
at which point the doctors called me in to sit with them for some cool afternoon drinks served by one of the many "extra persons" I see at the NICU on a daily basis. I've yet decipher all the "extra person" jobs, but I know one of them consists of serving tea and cool drinks.
It's around 12:30 p.m. by now and after a few cell phone calls the MRI is scheduled for 2:00 or 3:00 (at least we've narrowed it down to two times). I sit in on a few more consultations with patients-- no, we do not do HIPAA here-- and am excited when Scarlett's former twin roomies show up with their mommy for vaccinations.
I was thrilled to see their mommy, as I've had to cancel a reunion twice now. You'd think I was busy or something! Anyways, I'm hanging out with them as they're getting their shots, when our doctor receives a phone call. He then calls another extra person over and speaks to him in Hindi. Now I should tell you that I am failing miserably at learning the language one Bollywood film at a time, but I have figured out how to listen closely enough so that I can: (a) pick up a few words to know the general topic of conversation, and (b) know specifically when I am the topic of conversation-- as was the case this time.
I look to my mommy friend for the full interpretation. She tells me that they are discussing my heading to the clinic ahead of Hayden "to make sure there is nobody else in the machine."
Right. Because surely a second body in the machine would really throw things off. The suggestion, however, has yet to make its way back to Hayden's entourage, when I see a baby on oxygen being wheeled by into an ambulance.
Hey, wait a second, that's my baby! Runnnnnnnnnnn.
I hurry outside after the entourage and attempt to step foot into the ambulance, but am instead instructed to wait. Seconds later a driver in a shiny white SUV shows up out of nowhere. (I find out later that the doctor has arranged his driver and car for me. Duh. Shiny white SUVs do not frequent Pitampura.)
I'm waved into the car and quickly driven off as I watch the ambulance disappear in the rear view mirror.
The fact that I have just gotten into a random car with a random driver with no instruction whatsoever is not lost on me. But hey, I've been in India for 3 months now. If this sort of thing made me nervous, I would never have survived
We arrive at the clinic
and I am ushered into a corner back room with three men sitting/laying on 3 different couches-- Mr. Barefoot and Asleep, Mr. Shining My Motorbike Helmet, Mr. Busy on My Laptop. Mr. Shining My Motorbike Helmet gets up so that I can sit down. I hesitate.
After 3 months in India, I know all about corner back rooms. Rule number one. Do not ever get comfortable. Ever.
Because that's exactly what they want you to do. Put your feet up, have some tea and forget about your desire to be present during [insert important event] so that the abbreviated more fluffier version can be relayed to you by a third party at a later date, thereby decreasing the risk that you might actually ask questions about what went on.
Fortunately, before I have to make the decision, I hear a familiar wail. I swear, it's as if he just knew he had to send out some kind of signal. I escape the corner back room and slowly sneak behind the entourage into the scan room.
The staff doctor who's accompanying Hayden from the NICU looks at me and asks if I plan on staying in the room. Um, yes, I am the mom.
Ok, fine. You'll have to remove your "drops." She points to my earrings and I hand them to the driver to hold.
Master Hayden is bundled up in a blanket with his oxygen mask on and hooked up to a puloxometer so that his vitals can still be monitored during the test. I'm handed cotton for my ears. Another funny moment. It's India for goodness sake. If the sound of an MRI machine is too loud for me, then again, I am in trouble.
About midway through, the staff doctor sneaks out to talk to the MRI specialist. Hey, wait a second, can I come to? No, no you stay in with Hayden. Dammit. The plan backfires.
Suddenly, the procedure is over and the nurse whisks Hayden away into the ambulance. The staff doctor follows. I chase after. I'm stopped at the front desk and asked to pay 6000 INR. I quickly hand over my credit card, anxiously watching the entourage prepare to drive off. Am I supposed to stay here? Go back to the clinic? Wait for a shiny white SUV to appear? Please, somebody, fill me in. I get the typical blank stare, and meanwhile, the SUV does appear. I opt to get in again and hope for the best. Minutes later we are back at the NICU.
I am told that the preliminary results look normal, and that "my presence is expected tomorrow" to review the full report. Oh man, I totally had plans for the pool. Kidding.
I call Rahul and ask him to come get me, as I had arrived that morning with a another couple who had already left. Meanwhile, Dr. Singh gets a phone call confirming that the results are "normal." Excellent.
I then ask exactly what this means. If there is no underlying neurological cause, it means it's strictly a respiratory problem... making the million dollar question, how much time will it take for his respiratory system to develop?
"Let's not talk about time," the doctor responds. "Just have patience."
Got it. Patience. 4 months of p-a-t-i-e-n-c-e. 4 years of p-a-t-i-e-n-c-e. I let him know that we are really really good at having p-a-t-i-e-n-c-e.
I go back to the hotel and cancel our flight home.
I am asked if I would like to rebook for a future date.
Not at this time, Ma'am. We don't have a future date. For now, I will just have patience...

Normal is great! Hang in there!
ReplyDeleteThanks guys! We are hanging... by a thread!
DeleteSorry to hear your return flight is once again TBD. But it's great Hayden's test result came back normal. Hang in there. You have the most patience than anyone I know.
ReplyDeleteHey guys! I've been thinking of you. So glad to see the awesome pictures of Ethan at home! Hope everyone is getting settled. Sending hugs from Delhi!
DeleteSorry to hear your return flight is once again TBD. But it's good to know Hayden's results came back normal. Hang in there. You have the more patience than anyone else I know.
ReplyDeleteYou have patience and good humour and love for Hayden and Scarlett and of course Duanne. YOu are really amazing and an inspiration to every one. Hope you can publish a book from all of your blogs it would due a best seller.
ReplyDeletemaintain course and speed ( an old mariners saying when things are tough) love from us
Writing a book is becoming more an more appealing... as there is quite a bit of waiting to be done around here! Thanks for the lovely comments.
DeleteYou're my hero Bernadette! Little Hayden will be so proud one day of his mama!!! Hang in there.
ReplyDeleteHayden is MY hero! Thinking of you guys!
DeleteSo happy to hear things are normal - now tell that little man to get stop fooling around and start breathing!! I'm telling you it is a boy thing - whether they are 3 months or 40 years they like to be pampered. I bet he has all the ladies captivated in that hospital with those big eyes and sweet cheeks. ;-) Good Luck and you remember to take some time and breathe too!
ReplyDeleteSeriously, what is it with these boys? And, yes, I do manage to find time to breathe... although it becomes really difficult in Delhi sometimes;)
DeleteOh bernadette, i cried reading this post. Stay strong you're doing so well. It's good the results were normal, and i agree please write your own book with all posts, I know so many millions of people would be interested to read. Hope today is going better and that things progress forwards. SR x x *hugs*
ReplyDeleteThe days are getting better! And thanks for the hugs and lovely comments:)
DeleteGosh, you rock with your storytelling. I agree with the bestseller book comment...
ReplyDeleteMost importantly, though, is that Hayden has crossed an awesome milestone and while your flight home isn't certain, your son's neurological health is...and that's AWESOME.
Oh, and I'm terrible at patience, first one to admit it, so keep venting on here because you've got my ear. BIG TIME. HUGS.
Ha! The good stuff doesn't even make it into the blog;) Considering the book... You can't make this stuff up!
DeleteThank god for your posts Bernadette! Thank you so much for the real experience! I don't do "fluffy" so well either. The compassionate side of me hopes you are well and truly home by the time we arrive - the totally selfish side of me hopes we meet . . . Sorry about that! XX
ReplyDeleteNo apologies necessary. I'd love to meet you!!! (Of course, we want your little bean to stay put as long as possible. No NICU for that one!) xo
DeleteGreat to know that things are normal but I feel for you, I am no good with the patience but you are doing very, very well. Sending you my prayers.
ReplyDeleteOh Bernadette...you, Hayden and Scarlett will get home....if I just had a magic crystal ball...good news on the MRI...hang in there....
ReplyDeleteBernadette, we're really feeling for you while you're in India. I think Ezra and Cedric and sending twin vibes (whatever those are) to Scarlet and Hayden and Chad and I are sending you the most positive thoughts we can possibly muster.
ReplyDeleteWe are feeling the vibes and the good thoughts. And while we'd love to see you guys again, we are sincerely hoping that we leave before you arrive. We will see...
DeleteNormal is such an under-stated word. It's amazing -- and a huge milestone. I've just caught up on your journey and you truly are one of the most amazing and positive women that I've (not yet) met. Have a nice big glass of wine, you are on the right track.
ReplyDeleteHmmm... have you ever tried Indian wine? It's takes a few big glasses to be able to tolerate:) Thanks for the lovely comments!
DeleteNORMAL!!!!! Very nice! Do you realize that this was Hayden's first time seeing the outside? As I was reading, I was panicking thinking that you didn't get to take his photo on his first visit "OUT". Wow, what a whirlwind day! Sorry about the flight, but gosh, Normal sounds good to me!
ReplyDeleteYes, we do whirlwind quite well in India. They are so in trouble when I master this Hindi. Unfortunately, for now, I am failing miserably...
DeleteB: quick fix sounds like it would be nice... but I read about them and ... well ... NORMAL is GRAND and WAY BETTER.
ReplyDeleteYou are wonderful and amazing and this must be crazy making for you AND your husband. Around the world there are little spots of light, people caring for and about you all. Stay strong, cry as needed, hold on to faith and grace.
Best wishes..... a spot of light that cares.....
Oh, thank you so much for the lovely comment. We DO feel these spots of light, and they are what has kept us going! Thank you!!!
Deleteis there any way to have an infant respiratory specialist in the states have a second look at hayden's case? just to make sure there is not anything different or in addition to what is already being done for him?
ReplyDeletei am sorry if this is a ridiculous question, but i am worried for you, and just want to see him improve so you can all go home, safe and healthy.
what you are doing takes such strength and bravery... you are a great mom.
Not a ridiculous question at all! It's just a touchy situation. Access to your own medical information (or your child's) is not a "right" as it is in the states. For now, we need to do our best to work with the doctors here, and then, of course, we'll have everything looked at in the states when we return. Because we will return... sometime:)
DeleteGod bless you! I am certain my patience abilities would have been long gone by this point. You are doing great...hang in there!!! Normal is such an understatement for such an exceptional young man by the way..don't ya think!?!?
ReplyDeleteLove this! I'm going to read it to Hayden tomorrow. And btw, I vaguely recall somebody dealing with a horrific exit visa process who had an incredible amount of patience-- so much that he inspired me to pursue my dream of having a family! Happy Anniversary!
DeleteSo glad to hear that Hayden's test results came back NORMAL. Hang in there...you'll be back home soon and one day when this is all over, you may want to consider writing a book because you are such an amazing storyteller!!
ReplyDeleteThanks guys! I think the book could write itself at this point. India is one very "special" place:)
DeleteNormal is an amazing word !!
ReplyDeletePlease tell hayden that he needs to up his game now as we are on count down to come to delhi in august and however much i would love to meet you all... i would drather you were at home with your husband and there dad!!
You are an inspiration Bernadette!!
Bw lisa xox
i read your posts and gain so much inspiration. i'm glad the results came back normal and will be thinking about you!
ReplyDeleteyou ARE so incredibly patience. <3<3<3
maria
I had the chance to meet this great figther! Go go darling! Hope to have great news tomorrow by noon!
ReplyDeleteYou have such great humour and spirit....keep venting and blogging,you are a true inspiration to all those that are also seeking strength,endurance,patience and hope!!I didnt think that we would ever meet,as you were hopefully going to go home soon.But it looks like I may get the chance to give you a big hug in person as I will in india next week.If there is anything that I can bring to you /Scarlett/Hayden... just let me know....
ReplyDeletekathy
Oh wow! We'll definitely be here. I'm at Svelte. Just ask for Bernadette.. they all know who I am:)
DeleteMy head would have probably exploded by now and there is no way my smiles would actually look like smiles (like yours actually do), by now there would be a gaping hole where my gritting teeth removed what used to be my mouth !! LOL
ReplyDeleteSo glad Haydens scans were normal and him and Scarlett continue to be gorgeous like their mum ! Go team.
Oh wow! It's your comments that keep me smiling:) And I promise, there is a good deal of teeth gritting-- we just put the cameras away for those moments...
DeleteWe're bleary-eyed from jetlag and 3a feedings, but we logged on specifically to see how the MRI went. Hang in there and let us know if we can do anything to help. I'll have Clara and Olivia activate their Wondertwin powers for Hayden and Auntie Berndette. We miss you.
ReplyDeletexo
I am SUPER missing you guys! I had the best nurse story the other day and nobody (except Scarlett) to share it with. Aside from a half smile, she wasn't much of an audience. Hugs to Clara and Olivia-- I am sure they are keeping you guys quite busy! xo
DeleteThat is awesome news! "Normal" is just perfect!
ReplyDeletewholly you have a lot of patience...you are doing great. I'm praying like crazy to get you home! Congrats on a hard earned, well deserved, super duper.."normal". So great. Thinking of you!
ReplyDelete