Friday, November 25, 2011

Not What I Had Planned to Post Today

We didn't receive our scheduled scan for Ken today.

Not because he was partying too hard the night before, running a little late, or up to any of his usual antics.

We know now. It was just too hard for him to tell us...

Instead, we received an email from Dr. S asking for the best number to reach us.

I knew it was bad news.

By the time the phone was ringing I was crying, and we both just stared at it, neither one of us wanting to pick it up.

I handed it to Duane, and as he was listening I'm asking "Is he gone?" And Duane says "Well, no" and before he can finish I take the phone. I should have let him finish...

Now Duane is crying and as I'm listening to Dr. S, he is telling me, "Tell her we'll love him no matter what. Whatever is wrong with him we don't care. We want him."

Ken has a cystic hygroma. Dr. S is going to terminate the pregnancy.

I am glad that in that split second before Dr. S gave me the news, Duane said what he said. In my heart, I need to know that if we were given the choice, we would have fought for Ken. Unfortunately, there is no choice. His condition is fatal and we know that Dr. S knows what is best for everyone involved.

Our surrogate is sad. She is not talking. I pray that she will be matched with another loving couple, and that the sadness will fade as she helps another couple realize their dreams.

I woke up this morning, poised to write a lovely post about how much better today was as compared to three years ago today... the day we lost our first set of twins.

It wasn't better. It wasn't worse.

It was the same. The same heart wrenching sadness of loss that has haunted us since we first embarked on our family building journey. Unfortunately, we cannot insulate ourselves from it-- no matter how much money we spend, how many egg donors or surrogates or different doctors we use, no matter how many gestational milestones we pass. Somehow, this sadness, it always returns...
















35 comments:

  1. Bernadette and Duane, I'm so sorry. I was a bit behind on reading everyone's posts and I didn't know anything was wrong with your little guy. There are no words but I'm thinking about you guys. Stay strong. Big, huge hugs from Hawaii...take care of yourselves.

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  2. What a heartwrenching post... I'm so sorry, Bernadette.

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  3. This wasn´t the post I wanted to read before I go to bed!
    I do know the feeling and I do feel your pain but it will be better - you have to think like that! Don´t give up, your time will come and when it does you will love it even more! Take time and then come back! Thinking of you.

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  4. I am so sorry,this journey is not fair, kind or just. These stains on our soul remain with us forever,stay strong, keep breathing and moving forward,
    CC x

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  5. We are sending you our most heartfelt condolences.

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  6. words fail me Bernadette but i believe God knows best. i am so sad to read this and i pray that God gives you and Doug the strength to bear this loss.I cant help but remember how much support you have lent me and when the going was tough you have always been there. please take heart and know that we are always here. hugs, hugs hugs

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  7. i am so sorry for you both and know alittle of how you are feeling, our twins were induced in july at 18 wks and for weeks i couldnt understand why, they were both poorly !! thinking of you both...
    BIG HUG FROM UK XXX

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  8. So very sorry to read this, it is heartbreaking news.

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  9. Dear Bernadette and Duane

    I'm so sorry for you. Don't know what else to say so sorry.

    Aveyxx

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  10. Dear Bernadette and Duane, our thoughts and prayers are with you both. We are truly sorry for this sad news.

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  11. Dear Bernadette and Duane,
    I agree with Fredrik, it wasn't the news I wanted to get. :( I am VERY sorry to read your lines, SO VERY SORRY!
    Be strong, be in the moment although it is sad. Cry your tears and better days will come to you.
    Love,
    Anu

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  12. Nooooooo!!!!!! I wish this was not true, I wish this was just a terrrible nightmare. I am so so sorry. Sometimes life is so damn cruel! I am so upset for you and my heart goes out to you. You have endured enough!!!! Please email any time if you need to talk or call or skype. I will post those details on my email. I wish I could come over and hug you and help you, so very sorry. Bec xxx

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  13. Nooooo...I am so sorry for you two!!I just don't understand why these curve balls have to be thrown like this for some of us in this infertility world.My heart goes out to you..and know that you are thought of through these tough times....
    kathy

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  14. I'm joining this blog at a very sad time. I'm so sorry. It pained to read this so I can only imagine what you're going through.
    Take care.
    Your Friend, Mark

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  15. Bernadette & Duane, My heart goes out to you!

    This process is full of emotions, some good and some awful and it's just not fair, your strength is inspirational to all of us...... We are all here to support you!

    Huge Hugs for you both all the way from Australia......

    Love Simon x

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  16. I'm so very sorry to hear this news.... Thinking of you both xxxx

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  17. I am soooooooooo sorry, and i do know the strange emotion you are experiencing. It does get better, but never goes away. We will be thinking about you.

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  18. I am so sorry for the both of you. My heart and tears go out to you.
    Jean

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  19. Dear Bernadette and Duanne,
    I have shared the journey with you thru Blogland. Your sadness tears and triumphs. I am so very very sorry to hear this sad sad news. I pray that you have the strength to carry on the journey. I pray that you will be blessed with miracles. I pray for your little one's soul.
    anonymous
    Sydney

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  20. I am so sorry to hear this news. How hard it must be to be so far away from your baby and hear this. I'll be thinking of you both.

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  21. Dear Bernadette and Duane,

    I am so sad and so sorry and so horrified this has happened. My heart is very heavy, please know we all care so much, you have had such a lot thrown your way, your days of joy are coming.

    Much love Meg, Bob and Toby xxx

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  22. Dear Bernadette and Duane, I'm so very very sad to read your post. Darling little Ken is very loved, and in spirit he will live on in his siblings and their adventures and achievements. This is so painful ... we all love you guys and want only joy to come your way. Many hugs. Ayesha

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  23. Oh gosh guys I am so sad for this. Not fair at all. Hug each other tight.

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  24. Bernadette and Duane,

    So sorry to hear of your loss! I am thinking of you guys and your surrogate.

    Stacey

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  25. Oh my I am so very very very sorry :(

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  26. I'm so very very sorry for you both. This journey just doesn't get easier, huh? Take all the time you need to grieve and hold onto eachother tight. Sending you warm hugs and prayers

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  27. I have nothing to say and nothing to offer other than warm hugs. I have lost a child and I know what not to say. Gentle hugs.

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  28. So sorry for your loss. I know the pain well. We lost twins at 22 weeks for no reason and it leaves a dint in your heart forever. Take your time to grieve the loss of your little one but don't give up. We now have another set of beautiful healthy twins after two more tries and we hope that they can give inspiration to other couples that it can eventually happen for them as well. Big Hugs.

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  29. Bernadette,

    Honey I a truly saddened to hear this and I am so sorry for your loss. You and your family are in my thoughts and prayers. ((HUGS))

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  30. It's hearbreaking to read about the loss of your precious baby. Sending love & strength from Australia.
    TC

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  31. We are both so sorry to hear your news..
    Please take care and know that from all over the world we are thinking of you and sending love and thoughts to help your through this sad time.. SJ & B xx

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  32. There are no words to say to you. I know this sadness and I only wish there was something anyone could do to help you through it. Please know you are both being thought of.

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  33. My heart goes out to you. Thinking of both of you, please email me if you ever need another outlet. Take care of yourselves through the painful journey. xxx

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  34. Dear Bernadette & Duane, we were so very sorry and upset to read your sad news. Our heart goes out to you both and your amazing surrogate. Sending you love and hugs from Western Australia xxxx

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  35. Dear Bernadette and Duane,

    We are so truly sorry to read about the loss of your little one. There is no pain like that of losing a child, and you have our most sincere sympathy. You and the surrogate are in our thoughts and prayers. If we can do anything at all for you, please let us know.

    Alex and Jill

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